Dear Illinois Valley Wheelmen,
I’m helping to coordinate a charity cycling event that benefits the Friedreich’s Ataxia Research Alliance (FARA). With your organization’s support of attending our charity bike ride, you can help bring people living with FA closer to treatments and a cure.
Event: rideATAXIA Chicago
Date: Sunday, July 24th
For: Friedreich’s Ataxia Research Alliance (FARA). A non-profit organization dedicated to funding research to cure Friedreich’s Ataxia, a debilitating, life-shortening, degenerative neuromuscular disorder with no treatment or cure. Ride Ataxia is currently the biggest fundraiser for FARA.
Location: Channahon Central Park – Channahon, IL
Brief Description: 4, 12, 27, and 50 mile road route options. Fully stocked rest stops, strong SAG support, and delicious post ride food prepared by Outback Steakhouse, Bonefish Grill and Carrabba’s. Fundraising benefits the Friedreich’s Ataxia Research Alliance (FARA). Fundraising not required but strongly encouraged. For details including route maps and registration visit: rideATAXIA.org/chicago
Registration Fee: $45 Regular Priced Cyclist (No Fundraising Minimum) or $25 Reduced Price Cyclist (With $200 Fundraising Minimum); increases by $5 after 6/24/2016 and $10 for same day registration. Includes ride, Lunch, and event t-shirt.
Friedreich’s ataxia (FA) is a debilitating multi-system disease and the most common type of inherited ataxia. 1 in 100 people are carriers of the FA gene. What begins as difficulty with balance and coordination progresses over a short period of time to a life altering loss of mobility, energy, speech and hearing, robbing children and young adults of the ability to live active lives. FA also presents serious risk of diabetes and life shortening cardiac disease. As of today, there is no treatment or cure. Fundraising to support FA research is strongly encouraged, but not required.
I am 20 years old and a sophomore at the University of Illinois. I was diagnosed with FA 8 years ago. I will be riding my recumbent bike 12 miles in this years ride. We have THE best post ride food. Come on out and be a part of the cure!
I sincerely appreciate your support and look forward to hearing from you soon.